Research Moves Slowly. Rare Diseases Don't—So Patients Aren't Waiting

newsweek.com/research-moves-slowly-rare-diseases-dontso-patients-arent-waiting-2090277

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When Casey McPherson became a father, his purpose became clear. He needed to raise his daughter, Rose, to be loving, courageous, healthy and strong. He needed to protect her.
Many parents can empathize with that desire to keep their…

This story appeared on newsweek.com, 2025-06-28 12:04:01.
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